{"version":"1.0","provider_name":"PTC Therapeutics (United States)","provider_url":"https:\/\/www.ptcbio.com","title":"Listening First: What We've Learned from the Rare Disease Community","type":"rich","width":600,"height":338,"html":"<blockquote class=\"wp-embedded-content\" data-secret=\"Myik8rnKMD\"><a href=\"https:\/\/www.ptcbio.com\/posts\/listening-first-what-weve-learned-from-the-rare-disease-community\/\">Listening First: What We&#8217;ve Learned from the Rare Disease Community<\/a><\/blockquote><iframe sandbox=\"allow-scripts\" security=\"restricted\" src=\"https:\/\/www.ptcbio.com\/posts\/listening-first-what-weve-learned-from-the-rare-disease-community\/embed\/#?secret=Myik8rnKMD\" width=\"600\" height=\"338\" title=\"&#8220;Listening First: What We&#8217;ve Learned from the Rare Disease Community&#8221; &#8212; PTC Therapeutics (United States)\" data-secret=\"Myik8rnKMD\" frameborder=\"0\" marginwidth=\"0\" marginheight=\"0\" scrolling=\"no\" class=\"wp-embedded-content\"><\/iframe><script type=\"text\/javascript\">\n\/* <![CDATA[ *\/\n\/*! This file is auto-generated *\/\n!function(d,l){\"use strict\";l.querySelector&&d.addEventListener&&\"undefined\"!=typeof URL&&(d.wp=d.wp||{},d.wp.receiveEmbedMessage||(d.wp.receiveEmbedMessage=function(e){var t=e.data;if((t||t.secret||t.message||t.value)&&!\/[^a-zA-Z0-9]\/.test(t.secret)){for(var s,r,n,a=l.querySelectorAll('iframe[data-secret=\"'+t.secret+'\"]'),o=l.querySelectorAll('blockquote[data-secret=\"'+t.secret+'\"]'),c=new RegExp(\"^https?:$\",\"i\"),i=0;i<o.length;i++)o[i].style.display=\"none\";for(i=0;i<a.length;i++)s=a[i],e.source===s.contentWindow&&(s.removeAttribute(\"style\"),\"height\"===t.message?(1e3<(r=parseInt(t.value,10))?r=1e3:~~r<200&&(r=200),s.height=r):\"link\"===t.message&&(r=new URL(s.getAttribute(\"src\")),n=new URL(t.value),c.test(n.protocol))&&n.host===r.host&&l.activeElement===s&&(d.top.location.href=t.value))}},d.addEventListener(\"message\",d.wp.receiveEmbedMessage,!1),l.addEventListener(\"DOMContentLoaded\",function(){for(var e,t,s=l.querySelectorAll(\"iframe.wp-embedded-content\"),r=0;r<s.length;r++)(t=(e=s[r]).getAttribute(\"data-secret\"))||(t=Math.random().toString(36).substring(2,12),e.src+=\"#?secret=\"+t,e.setAttribute(\"data-secret\",t)),e.contentWindow.postMessage({message:\"ready\",secret:t},\"*\")},!1)))}(window,document);\n\/\/# sourceURL=https:\/\/www.ptcbio.com\/wp-includes\/js\/wp-embed.min.js\n\/* ]]> *\/\n<\/script>\n","thumbnail_url":"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2026\/02\/Rare-Disease-Day-PKU.png","thumbnail_width":466,"thumbnail_height":262,"description":"In rare disease, progress starts with&nbsp;listening. Rare Disease Day is an opportunity to recognize the millions of people worldwide living with rare conditions \u2014 and to reflect on what it truly means to support them. At PTC, support and meaningful impact begins by&nbsp;listening&nbsp;to the people who live this reality every day. It\u2019s those who are&hellip;"}