{"id":7885,"date":"2022-06-08T13:22:16","date_gmt":"2022-06-08T13:22:16","guid":{"rendered":"https:\/\/www.ptcbio.com\/?p=7885"},"modified":"2024-08-29T16:07:31","modified_gmt":"2024-08-29T20:07:31","slug":"feriel-can-inspire-other-women-with-duchenne","status":"publish","type":"post","link":"https:\/\/www.ptcbio.com\/posts\/feriel-can-inspire-other-women-with-duchenne\/","title":{"rendered":"Feriel Inspires Other Women with Duchenne"},"content":{"rendered":"\n<figure class=\"wp-block-image alignleft\"><img decoding=\"async\" src=\"https:\/\/admin.ptcbio.com\/en\/wp-content\/uploads\/sites\/3\/2022\/06\/feriel2-225x300.jpg\" alt=\"Feriel\" class=\"wp-image-7889\"\/><\/figure>\n\n\n\n<p class=\"core-block core-paragraph\">Feriel Chebba is a 30-year-old woman who is living with Duchenne in France. Diagnosed at 6 years old following a muscle biopsy, Ferial has used a wheelchair since she was 11 years old. But her diagnosis hasn\u2019t stopped her from having a positive outlook and living in the moment.<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">After primary school, Feriel attended college where she studied performing arts, film and theater studies for two years. Her creative flair keeps her motivated and curious of life.<\/p>\n\n\n\n<div  class=\"quote-block  color-theme--white\">\n\n\t\n\t<div class=\"quote-block__content\">\n\t\t<blockquote class=\"quote-block__text color-theme-border--white\">\n\t\t\t<div class=\"quote-block__heading heading--4\">\n\t\t\t\tI am a strong and courageous woman who rarely complains. I live day to day and enjoy the present moment. I am very positive.\t\t\t<\/div>\n\t\t<\/blockquote>\n\n\t\t\n\t\t\t<\/div>\n\n<\/div>\n\n\n\n\n<figure class=\"wp-block-image alignright\"><img decoding=\"async\" src=\"https:\/\/admin.ptcbio.com\/en\/wp-content\/uploads\/sites\/3\/2022\/06\/feriel1-300x300.jpg\" alt=\"Feriel\" class=\"wp-image-7888\"\/><\/figure>\n\n\n\n<p class=\"core-block core-paragraph\">Only 1 in 50 million baby girls are born with Duchenne.1 Despite the rarity of this condition in girls, Feriel has harnessed the power of social media to make contact with several other women living with the condition. In order to help others do the same she has set up a Facebook group \u2018<a href=\"https:\/\/www.facebook.com\/groups\/614147219794511\/\" target=\"_blank\" rel=\"noopener\">Girls with DMD in the world<\/a>\u2019 which aims to bring a community of females with Duchenne together. Feriel is also passionate about ensuring that girls and women with Duchenne aren\u2019t left behind, and has shared her story with La Force DMD, Muscular Dystrophy UK and Rare Disease Day, to educate people that \u201cfemales with Duchenne are rare, but they do exist and deserve to be heard.\u201d<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">Feriel is an eager world traveler and has visited 12 different countries! Her favorite country she has been to date is Cuba, as she loved swimming in the warm sea, the magnificent scenery and meeting the friendly locals! For her next trip, Feriel and her family are going to Rome. \u201cTraveling with Duchenne is a bit tiring but doable\u201d says Feriel. For her, preparation is the key to a successful trip. Feriel even has a Facebook blog on the subject \u2018Travel in Wheelchair\u2019.<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">When she isn\u2019t travelling Feriel enjoys singing and takes classes every week. She also spends her time watching movies, reading, drawing, visiting museums, and exploring her city, Courbevoie, which is on the outskirts of Paris.<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">Feriel\u2019s advice for other people affected by Duchenne is to \u201cLive day to day and enjoy the present moment\u201d<\/p>\n\n\n\n<p class=\"core-block core-paragraph\"><small>1. Nozoe KT, <em>et al. <\/em>Phenotypic contrasts of Duchenne Muscular Dystrophy in women: Two case reports. <em>Sleep Sci. <\/em>2016; 9(3): 129\u2013133.<\/small><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Feriel&#8217;s Duchenne diagnosis hasn\u2019t stopped her from having a positive outlook.<\/p>\n","protected":false},"author":1,"featured_media":16108,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[19,60],"tags":[],"media-type":[5],"therapeutic-area":[21],"class_list":["post-7885","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-rare-disease-community","category-rare-journeys"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.5 (Yoast SEO v27.5) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Feriel Inspires Other Women with Duchenne - PTC Therapeutics (United States)<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.ptcbio.com\/posts\/feriel-can-inspire-other-women-with-duchenne\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Feriel Inspires Other Women with Duchenne\" \/>\n<meta property=\"og:description\" content=\"Feriel&#039;s Duchenne diagnosis hasn\u2019t stopped her from having a positive outlook.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.ptcbio.com\/posts\/feriel-can-inspire-other-women-with-duchenne\/\" \/>\n<meta property=\"og:site_name\" content=\"PTC Therapeutics (United States)\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/PTCTherapeutics\" \/>\n<meta property=\"article:published_time\" content=\"2022-06-08T13:22:16+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-08-29T20:07:31+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2024\/08\/Feriel-DMD-1.png\" \/>\n\t<meta property=\"og:image:width\" content=\"466\" \/>\n\t<meta property=\"og:image:height\" content=\"262\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"mindgrub\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@PTCBio\" \/>\n<meta name=\"twitter:site\" content=\"@PTCBio\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"mindgrub\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/www.ptcbio.com\\\/posts\\\/feriel-can-inspire-other-women-with-duchenne\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/www.ptcbio.com\\\/posts\\\/feriel-can-inspire-other-women-with-duchenne\\\/\"},\"author\":{\"name\":\"mindgrub\",\"@id\":\"https:\\\/\\\/www.ptcbio.com\\\/#\\\/schema\\\/person\\\/ad620984ffa95aa1ade6802572186b80\"},\"headline\":\"Feriel Inspires Other Women with Duchenne\",\"datePublished\":\"2022-06-08T13:22:16+00:00\",\"dateModified\":\"2024-08-29T20:07:31+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/www.ptcbio.com\\\/posts\\\/feriel-can-inspire-other-women-with-duchenne\\\/\"},\"wordCount\":355,\"publisher\":{\"@id\":\"https:\\\/\\\/www.ptcbio.com\\\/#organization\"},\"image\":{\"@id\":\"https:\\\/\\\/www.ptcbio.com\\\/posts\\\/feriel-can-inspire-other-women-with-duchenne\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/www.ptcbio.com\\\/wp-content\\\/uploads\\\/sites\\\/2\\\/2024\\\/08\\\/Feriel-DMD-1.png\",\"articleSection\":[\"Rare Disease Community\",\"Rare Journeys\"],\"inLanguage\":\"en-US\"},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/www.ptcbio.com\\\/posts\\\/feriel-can-inspire-other-women-with-duchenne\\\/\",\"url\":\"https:\\\/\\\/www.ptcbio.com\\\/posts\\\/feriel-can-inspire-other-women-with-duchenne\\\/\",\"name\":\"Feriel Inspires Other Women with Duchenne - 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