{"id":5881,"date":"2021-04-27T15:58:27","date_gmt":"2021-04-27T15:58:27","guid":{"rendered":"https:\/\/www.ptcbio.com\/?p=5881"},"modified":"2024-08-09T14:43:46","modified_gmt":"2024-08-09T18:43:46","slug":"amazon-duchenne-community-can-count-on-leandro-duchennecan","status":"publish","type":"post","link":"https:\/\/www.ptcbio.com\/posts\/amazon-duchenne-community-can-count-on-leandro-duchennecan\/","title":{"rendered":"Amazon Duchenne Community CAN Count on Leandro &#8211; #DuchenneCan"},"content":{"rendered":"\n<figure class=\"wp-block-image alignleft\"><img decoding=\"async\" src=\"https:\/\/admin.ptcbio.com\/en\/wp-content\/uploads\/sites\/3\/2021\/04\/Foto-1-150x150.jpg\" alt=\"Leandro in the Amazon\" class=\"wp-image-5884\"\/><\/figure>\n\n\n\n<p class=\"core-block core-paragraph\">At PTC, we\u2019re passionate about supporting those living with rare diseases, even when they live in the most inaccessible parts of the world. Leandro, a PTC colleague in Brazil, plays a key role in educating physicians in remote areas along the Amazon River. He shares information about <a href=\"https:\/\/www.ptcbio.com\/our-science\/therapeutic-areas\/about-duchenne-muscular-dystrophy\/\">Duchenne muscular dystrophy<\/a> (DMD), and has helped make a positive impact on some isolated Duchenne communities.<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">Across the Amazon rainforest, many people, including indigenous tribes, have limited access to healthcare. Living away from main cities can impact healthcare professionals\u2019 access to training and education, including up-to-date information about rare diseases. This means many patients living with rare, genetic diseases like Duchenne can experience delays in diagnosis and access to treatments \u2013 limiting their quality of life and potential life expectancy.<\/p>\n\n\n\n<div  class=\"quote-block  color-theme--white\">\n\n\t\n\t<div class=\"quote-block__content\">\n\t\t<blockquote class=\"quote-block__text color-theme-border--white\">\n\t\t\t<div class=\"quote-block__heading heading--4\">\n\t\t\t\tIt was my mission to make sure that Duchenne patients living in the Amazon do not get left behind.\t\t\t<\/div>\n\t\t<\/blockquote>\n\n\t\t\t\t\t<cite class=\"quote-block__author quote-block__author--name\">\n\t\t\t\tLeandro Vilar\t\t\t<\/cite>\n\t\t\n\t\t\t<\/div>\n\n<\/div>\n\n\n\n\n<p class=\"core-block core-paragraph\">Over the course of seven years, Leandro has traveled through the Amazon by car, plane and boat, reaching remote and underserved communities to deliver Duchenne educational programs to physicians. He has been able to raise awareness of rare disease among more than 300 physicians who have been able to advance their understanding of DMD diagnosis and disease management.<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">Because of Leandro\u2019s dedication to reaching remote communities, boys and young men with Duchenne in the Amazon CAN gain access to the care they need and, in turn, plan for their futures.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>At PTC, we\u2019re passionate about supporting those living with rare diseases, even when they live in the most inaccessible parts of the world. Leandro, a PTC colleague in Brazil, plays a key role in educating physicians in remote areas along the Amazon River. He shares information about Duchenne muscular dystrophy (DMD), and has helped make&hellip;<\/p>\n","protected":false},"author":1,"featured_media":9410,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[19],"tags":[],"media-type":[5],"therapeutic-area":[21],"class_list":["post-5881","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-rare-disease-community"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.5 (Yoast SEO v27.5) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Amazon Duchenne Community CAN Count on Leandro - #DuchenneCan - PTC Therapeutics (United States)<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.ptcbio.com\/posts\/amazon-duchenne-community-can-count-on-leandro-duchennecan\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Amazon Duchenne Community CAN Count on Leandro - #DuchenneCan\" \/>\n<meta property=\"og:description\" content=\"At PTC, we\u2019re passionate about supporting those living with rare diseases, even when they live in the most inaccessible parts of the world. Leandro, a PTC colleague in Brazil, plays a key role in educating physicians in remote areas along the Amazon River. He shares information about Duchenne muscular dystrophy (DMD), and has helped make&hellip;\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.ptcbio.com\/posts\/amazon-duchenne-community-can-count-on-leandro-duchennecan\/\" \/>\n<meta property=\"og:site_name\" content=\"PTC Therapeutics (United States)\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/PTCTherapeutics\" \/>\n<meta property=\"article:published_time\" content=\"2021-04-27T15:58:27+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-08-09T18:43:46+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2022\/12\/Amazon-Leandro-Banner.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1440\" \/>\n\t<meta property=\"og:image:height\" content=\"500\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"mindgrub\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@PTCBio\" \/>\n<meta name=\"twitter:site\" content=\"@PTCBio\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"mindgrub\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/www.ptcbio.com\\\/posts\\\/amazon-duchenne-community-can-count-on-leandro-duchennecan\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/www.ptcbio.com\\\/posts\\\/amazon-duchenne-community-can-count-on-leandro-duchennecan\\\/\"},\"author\":{\"name\":\"mindgrub\",\"@id\":\"https:\\\/\\\/www.ptcbio.com\\\/#\\\/schema\\\/person\\\/ad620984ffa95aa1ade6802572186b80\"},\"headline\":\"Amazon Duchenne Community CAN Count on Leandro &#8211; 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