{"id":5767,"date":"2021-03-16T18:38:27","date_gmt":"2021-03-16T18:38:27","guid":{"rendered":"https:\/\/www.ptcbio.com\/?p=5767"},"modified":"2024-12-05T15:26:17","modified_gmt":"2024-12-05T20:26:17","slug":"striving-to-change-perceptions-duchennecan","status":"publish","type":"post","link":"https:\/\/www.ptcbio.com\/posts\/striving-to-change-perceptions-duchennecan\/","title":{"rendered":"Striving to Change Perceptions"},"content":{"rendered":"\n<div  class=\"quote-block  color-theme--white\">\n\n\t\n\t<div class=\"quote-block__content\">\n\t\t<blockquote class=\"quote-block__text color-theme-border--white\">\n\t\t\t<div class=\"quote-block__heading heading--4\">\n\t\t\t\tMy advice to families living with Duchenne is to remember that your child\u2019s hopes, dreams and aspirations are not limited or defined by Duchenne. I think it\u2019s important to break through the noise of what your son cannot do, focus on the things he is able to do, and embrace life with Duchenne by living in the moment.\t\t\t<\/div>\n\t\t<\/blockquote>\n\n\t\t\t\t\t<cite class=\"quote-block__author quote-block__author--name\">\n\t\t\t\tTiffany Cook\t\t\t<\/cite>\n\t\t\n\t\t\t\t\t<cite class=\"quote-block__author quote-block__author--title\">\n\t\t\t\tSenior Director, CureDuchenne\t\t\t<\/cite>\n\t\t\t<\/div>\n\n<\/div>\n\n\n\n\n<p class=\"core-block core-paragraph\">Tiffany knows first-hand the impact <a href=\"https:\/\/www.ptcbio.com\/our-science\/therapeutic-areas\/about-duchenne-muscular-dystrophy\/\">Duchenne muscular dystrophy<\/a> has on an affected individual and their family members. After Tiffany\u2019s son, Wil, was diagnosed with a rare form of Duchenne, she immersed herself in helping others navigate their Duchenne journeys through her work at <a href=\"https:\/\/www.cureduchenne.org\/\" target=\"_blank\" rel=\"noopener\">CureDuchenne<\/a>, a non-profit organization. Using her experience as a qualified speech-language pathologist and mom to a son with Duchenne, Tiffany is helping others live meaningful and purposeful lives by shifting mindsets and motivating families to focus on abilities rather than disabilities.<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">That\u2019s how a three-part webinar series entitled, \u201cEmbrace This Moment\u201d came about: Reflecting on Tiffany\u2019s personal journey, this series covers topics connected to the various stages of Duchenne. It is intended to help families transform their mindset and find silver linings.<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">Among other initiatives, Tiffany\u2019s proudest accomplishment is working on the CureDuchenne FUTURES national conference, an important gathering for the community. In 2019, this event attracted over 800 people and featured panels focusing on all aspects of living.<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">Tiffany\u2019s motivation and \u201cability\u201d to create a positive impact in the community exemplifies what families with #DuchenneCan do when focusing on positive things in their lives.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Tiffany, who&#8217;s son has Duchenne, motivates others to focus on abilities rather than disabilities.<\/p>\n","protected":false},"author":2,"featured_media":16289,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[19,60],"tags":[],"media-type":[5],"therapeutic-area":[21],"class_list":["post-5767","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-rare-disease-community","category-rare-journeys"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.5 (Yoast SEO v27.5) - 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