{"id":5467,"date":"2021-01-12T00:37:21","date_gmt":"2021-01-12T00:37:21","guid":{"rendered":"https:\/\/www.ptcbio.com\/?p=5467"},"modified":"2024-12-05T15:16:00","modified_gmt":"2024-12-05T20:16:00","slug":"bjorn-can-make-a-difference","status":"publish","type":"post","link":"https:\/\/www.ptcbio.com\/posts\/bjorn-can-make-a-difference\/","title":{"rendered":"Breaking Down Physical and Digital Barriers"},"content":{"rendered":"\n<figure class=\"wp-block-image alignleft\"><img decoding=\"async\" src=\"https:\/\/admin.ptcbio.com\/en\/wp-content\/uploads\/sites\/3\/2021\/01\/Bjorn-CAN-300x220.jpg\" alt=\"Bjorn CAN, Even with Duchenne\" class=\"wp-image-5468\" \/><\/figure>\n\n\n\n<p class=\"core-block core-paragraph\">Bj\u00f6rn, from Sweden, doesn\u2019t let his <a href=\"https:\/\/www.ptcbio.com\/our-science\/therapeutic-areas\/about-duchenne-muscular-dystrophy\/\">Duchenne muscular dystrophy<\/a> diagnosis stop him from making a difference and empowering others like him.<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">Independence has always been a focus for Bj\u00f6rn, now age 32. With the support of his government-funded (LSS) personal assistant, Bj\u00f6rn is living independently and working as an advisor for the Swedish Research Foundation for Muscular Dystrophy (SMDF). His work includes supporting and offering guidance over the phone to recently diagnosed families living with Duchenne, and taking a key role in week-long summer camps for children and young adults living with neuromuscular diseases.<\/p>\n\n\n\n<div  class=\"quote-block  color-theme--white\">\n\n\t\n\t<div class=\"quote-block__content\">\n\t\t<blockquote class=\"quote-block__text color-theme-border--white\">\n\t\t\t<div class=\"quote-block__heading heading--4\">\n\t\t\t\tAccessibility goes beyond a ramp or a lift. I\u2019m proud to be contributing to decision-making to improve accessibility for those living with disabilities in my community. I hope to empower and inspire others in shaping the future.\t\t\t<\/div>\n\t\t<\/blockquote>\n\n\t\t\t\t\t<cite class=\"quote-block__author quote-block__author--name\">\n\t\t\t\t Bj\u00f6rn\t\t\t<\/cite>\n\t\t\n\t\t\t<\/div>\n\n<\/div>\n\n\n\n\n<p class=\"core-block core-paragraph\">This year, he even gave a talk to 120 participants at the virtual SMDF Symposium 2021, highlighting the real-world impact and importance of personal assistants for people living with neuromuscular disorders. Bj\u00f6rn is keen to put his experiences into practice via his work with the local government to improve access to buildings, outdoor spaces and to shape new developments. He aims to make his town accessible to all.<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">In his free time, Bj\u00f6rn is an avid video gamer. Gaming opens opportunities for communication and a way to share moments with friends. When he heard that local game studio Massive Entertainment was looking for people with disabilities to test their games, he saw a great opportunity to work on his two passions \u2013 gaming and accessibility.<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">Bj\u00f6rn joined a network of game testers who play games and provide feedback on how their accessibility can be improved. For example, people living with Duchenne and other muscular dystrophies may find it difficult to press a button multiple times in quick succession. Feedback from Bj\u00f6rn and others has meant that a lot of games now have the option to hold down the button instead. This initiative, and others like them, have had a huge impact on opening the gaming world to people with a variety of accessibility challenges.<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">Bj\u00f6rn\u2019s endless positivity and dedication to improving many aspects in the lives of the Duchenne community inspires us. He continues to show that people living with Duchenne CAN achieve great things and create opportunities for others to do the same.<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Bj\u00f6rn doesn\u2019t let his Duchenne diagnosis stop him from empowering others like him.<\/p>\n","protected":false},"author":1,"featured_media":16271,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[19,60],"tags":[],"media-type":[5],"therapeutic-area":[21],"class_list":["post-5467","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-rare-disease-community","category-rare-journeys"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.5 (Yoast SEO v27.5) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Breaking Down Physical and Digital Barriers - 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