{"id":17654,"date":"2025-11-20T09:00:00","date_gmt":"2025-11-20T14:00:00","guid":{"rendered":"https:\/\/www.ptcbio.com\/?p=17654"},"modified":"2025-11-04T12:06:26","modified_gmt":"2025-11-04T17:06:26","slug":"in-this-together","status":"publish","type":"post","link":"https:\/\/www.ptcbio.com\/posts\/in-this-together\/","title":{"rendered":"In This Together"},"content":{"rendered":"\n<p class=\"core-block core-paragraph\">Sarah Chamberlin, the mother of a child with phenylketonuria (PKU) and a passionate advocate, shares her journey of turning a challenging diagnosis into an opportunity to create meaningful change for the PKU community.&nbsp;<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">By channeling her skills into advocacy, she led the transformation of National PKU News to flok, an organization with the mission to rally the inherited metabolic disorder community to continuously improve care and accelerate scientific progress.\u202f&nbsp;<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">In this video, Sarah reflects on the emotional journey of receiving her daughter\u2019s PKU diagnosis, and the strength and resilience of the PKU community.&nbsp;&nbsp;<\/p>\n\n\n\n<div style=\"padding:56.25% 0 0 0;position:relative;\"><iframe src=\"https:\/\/player.vimeo.com\/video\/1126954904?h=0dd7d09db8&amp;badge=0&amp;autopause=0&amp;player_id=0&amp;app_id=58479\" frameborder=\"0\" allow=\"autoplay; fullscreen; picture-in-picture; clipboard-write; encrypted-media; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" style=\"position:absolute;top:0;left:0;width:100%;height:100%;\" title=\"PTC - Sarah Chamberlin - Rare Journeys\"><\/iframe><\/div><script src=\"https:\/\/player.vimeo.com\/api\/player.js\"><\/script>\n","protected":false},"excerpt":{"rendered":"<p>Sarah Chamberlin, the mother of a child with phenylketonuria (PKU) and a passionate advocate, shares her journey of turning a challenging diagnosis into an opportunity to create meaningful change for the PKU community.&nbsp; By channeling her skills into advocacy, she led the transformation of National PKU News to flok, an organization with the mission to&hellip;<\/p>\n","protected":false},"author":14,"featured_media":17656,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[19,60],"tags":[],"media-type":[5,12],"therapeutic-area":[16],"class_list":["post-17654","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-rare-disease-community","category-rare-journeys"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.5 (Yoast SEO v27.5) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>In This Together - PTC Therapeutics (United States)<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.ptcbio.com\/posts\/in-this-together\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"In This Together\" \/>\n<meta property=\"og:description\" content=\"Sarah Chamberlin, the mother of a child with phenylketonuria (PKU) and a passionate advocate, shares her journey of turning a challenging diagnosis into an opportunity to create meaningful change for the PKU community.&nbsp; 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