{"id":17239,"date":"2025-05-16T10:00:00","date_gmt":"2025-05-16T14:00:00","guid":{"rendered":"https:\/\/www.ptcbio.com\/?p=17239"},"modified":"2025-05-09T11:06:39","modified_gmt":"2025-05-09T15:06:39","slug":"taking-control-of-her-huntingtons-disease-story","status":"publish","type":"post","link":"https:\/\/www.ptcbio.com\/posts\/taking-control-of-her-huntingtons-disease-story\/","title":{"rendered":"Taking Control of Her Huntington&#8217;s Disease Story"},"content":{"rendered":"\n<p class=\"core-block core-paragraph\">Evonne was motivated to undergo genetic testing for Huntington\u2019s disease (HD) after her father&#8217;s diagnosis, seeking to avoid the struggles he faced in his HD journey. Her decision was influenced by attending her first HD conference, ultimately confirming her gene-positive status in November 2018. Evonne&#8217;s HD advocacy work aims to inspire hope and resilience, emphasizing that individuals are more than their illness. By sharing her story, she hopes to foster a sense of community and empowerment, encouraging others to take control of their narrative and find strength in solidarity.&nbsp;&nbsp;&nbsp;<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">Listen to hear more about Evonne\u2019s HD story below:<\/p>\n\n\n\n<div style=\"padding:56.25% 0 0 0;position:relative;\"><iframe src=\"https:\/\/player.vimeo.com\/video\/1082899316?h=8fda51d438&amp;badge=0&amp;autopause=0&amp;player_id=0&amp;app_id=58479\" frameborder=\"0\" allow=\"autoplay; fullscreen; picture-in-picture; clipboard-write; encrypted-media\" style=\"position:absolute;top:0;left:0;width:100%;height:100%;\" title=\"Evonne HD Audio Clip - Subs\"><\/iframe><\/div><script src=\"https:\/\/player.vimeo.com\/api\/player.js\"><\/script>\n","protected":false},"excerpt":{"rendered":"<p>Evonne feels empowered by being an ambassador for Huntington&#8217;s disease.\u202f<\/p>\n","protected":false},"author":14,"featured_media":17240,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[19,60],"tags":[],"media-type":[5,27],"therapeutic-area":[13],"class_list":["post-17239","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-rare-disease-community","category-rare-journeys"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.5 (Yoast SEO v27.5) - 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