{"id":16337,"date":"2024-09-17T14:25:09","date_gmt":"2024-09-17T18:25:09","guid":{"rendered":"https:\/\/www.ptcbio.com\/?p=16337"},"modified":"2025-01-08T16:19:15","modified_gmt":"2025-01-08T21:19:15","slug":"tomas-shares-his-many-passions","status":"publish","type":"post","link":"https:\/\/www.ptcbio.com\/posts\/tomas-shares-his-many-passions\/","title":{"rendered":"Tom\u00e1\u0161 Shares his Many Passions"},"content":{"rendered":"\n<figure class=\"wp-block-image alignright size-full is-resized is-style-lightbox\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2024\/09\/DSC_1160-scaled.jpg\" alt=\"Tom\u00e1\u0161 Pik\" class=\"wp-image-16332\" style=\"width:514px;height:auto\" srcset=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2024\/09\/DSC_1160-scaled.jpg 2560w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2024\/09\/DSC_1160-300x200.jpg 300w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2024\/09\/DSC_1160-1024x683.jpg 1024w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2024\/09\/DSC_1160-768x512.jpg 768w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2024\/09\/DSC_1160-1536x1024.jpg 1536w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2024\/09\/DSC_1160-2048x1365.jpg 2048w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2024\/09\/DSC_1160-400x267.jpg 400w\" sizes=\"auto, (max-width: 2560px) 100vw, 2560px\" \/><button class=\"modal-toggle\" type=\"button\" data-bs-toggle=\"modal\" data-bs-target=\"#mg-image-modal\" aria-label=\"View image in lightbox\"><img fetchpriority=\"high\" decoding=\"async\" width=\"2560\" height=\"1707\" src=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2024\/09\/DSC_1160-scaled.jpg\" class=\"attachment-full size-full\" alt=\"Tom\u00e1\u0161 Pik\" hidden=\"\" loading=\"eager\" srcset=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2024\/09\/DSC_1160-scaled.jpg 2560w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2024\/09\/DSC_1160-300x200.jpg 300w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2024\/09\/DSC_1160-1024x683.jpg 1024w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2024\/09\/DSC_1160-768x512.jpg 768w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2024\/09\/DSC_1160-1536x1024.jpg 1536w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2024\/09\/DSC_1160-2048x1365.jpg 2048w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2024\/09\/DSC_1160-400x267.jpg 400w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/button><\/figure>\n\n\n\n<p class=\"core-block core-paragraph\">Tom\u00e1\u0161 Pik (34) is from Prague in the Czech Republic.\u00a0He was diagnosed with Friedreich&#8217;s ataxia (FA) at the age of 14, and has been using a wheelchair since he was 20.\u00a0\u00a0<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">Instead of allowing his condition to limit him, Tom\u00e1\u0161 decided to use his experiences to help others in similar situations.&nbsp;He is an active member of the patient organization Frieda in the Czech Republic, which he helped to establish.&nbsp;He is also an ambassador for the international organization FARA.&nbsp;<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">He is a prominent figure in promoting the sexuality of people with disabilities and helped to establish a sexual assistance service in the Czech Republic.&nbsp;In the documentary film &#8220;Love Me If You Can,&#8221; he appears as one of the protagonists and openly talks about his experiences.&nbsp;In 2016, this film won the audience award at the Jihlava International Documentary Film Festival.&nbsp;<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">He has extensive experience in the arts, has run a business, founded the &#8220;Z\u00e1ti\u0161\u00ed&#8221; Gallery in Prague, and worked there as a curator.&nbsp;He has been an art manager for several painters and artistic projects (Red Blue Dimension, Become a Painter, &#8230;).&nbsp;<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">Despite the physical limitations imposed by his condition, he actively travels and shares his experiences with others.&nbsp;&nbsp;For example, he has participated in trips around Europe, Thailand, Saudi Arabia and others.&nbsp;Currently, he combines traveling with visiting FA patients, having been to the USA for CureFA Soir\u00e9e and Austria, and he plans to visit Brazil, where there is a large FA community.&nbsp;<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">Besides art and travel, his great interests include politics, philosophy and cryptocurrency.&nbsp;He lives alone in a barrier-free apartment, and it is very important for him to remain as independent and active as possible for as long as possible.&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Tom\u00e1\u0161 wants to remain as independent and active as possible with FA for as long as possible.<\/p>\n","protected":false},"author":2,"featured_media":16340,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[19,60],"tags":[],"media-type":[5],"therapeutic-area":[23],"class_list":["post-16337","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-rare-disease-community","category-rare-journeys"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.5 (Yoast SEO v27.5) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Tom\u00e1\u0161 Shares his Many Passions - PTC Therapeutics (United States)<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" 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