{"id":14899,"date":"2023-11-21T08:20:21","date_gmt":"2023-11-21T13:20:21","guid":{"rendered":"https:\/\/www.ptcbio.com\/?p=14899"},"modified":"2024-08-29T15:43:55","modified_gmt":"2024-08-29T19:43:55","slug":"jessica-fabus-cheng-takes-the-duchennecan-crown","status":"publish","type":"post","link":"https:\/\/www.ptcbio.com\/posts\/jessica-fabus-cheng-takes-the-duchennecan-crown\/","title":{"rendered":"Jessica&#8217;s Many Crowns and Titles &#8211; Including Duchenne Advocate"},"content":{"rendered":"\n<figure class=\"wp-block-image alignleft size-full is-resized is-style-lightbox\"><img loading=\"lazy\" decoding=\"async\" width=\"667\" height=\"586\" src=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2024\/02\/51ee2983-fa4d-4bfe-bdf3-8eb8105ca235-copy.jpg\" alt=\"Jessica\" class=\"wp-image-15285\" style=\"width:262px;height:auto\" srcset=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2024\/02\/51ee2983-fa4d-4bfe-bdf3-8eb8105ca235-copy.jpg 667w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2024\/02\/51ee2983-fa4d-4bfe-bdf3-8eb8105ca235-copy-300x264.jpg 300w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2024\/02\/51ee2983-fa4d-4bfe-bdf3-8eb8105ca235-copy-400x351.jpg 400w\" sizes=\"auto, (max-width: 667px) 100vw, 667px\" \/><button class=\"modal-toggle\" type=\"button\" data-bs-toggle=\"modal\" data-bs-target=\"#mg-image-modal\" aria-label=\"View image in lightbox\"><img fetchpriority=\"high\" decoding=\"async\" width=\"667\" height=\"586\" src=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2024\/02\/51ee2983-fa4d-4bfe-bdf3-8eb8105ca235-copy.jpg\" class=\"attachment-full size-full\" alt=\"Jessica\" hidden=\"\" loading=\"eager\" srcset=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2024\/02\/51ee2983-fa4d-4bfe-bdf3-8eb8105ca235-copy.jpg 667w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2024\/02\/51ee2983-fa4d-4bfe-bdf3-8eb8105ca235-copy-300x264.jpg 300w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2024\/02\/51ee2983-fa4d-4bfe-bdf3-8eb8105ca235-copy-400x351.jpg 400w\" sizes=\"(max-width: 667px) 100vw, 667px\" \/><\/button><\/figure>\n\n\n\n<p class=\"core-block core-paragraph\">It is fair to say that Jessica Fabus Cheng is a very impressive woman who carries many crowns and titles including surgical nurse, sportswoman, mother, Duchenne carrier and cancer survivor, and Mrs. New York International 2023. She is also a former figure skater and in 2021 was listed as one of Taekwondo Life Magazine\u2019s \u201810 Women to Watch\u2019.<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">Her personal story with Duchenne started in 2004, when she learned that her younger cousin Tommy, was diagnosed with Duchenne. She recalls it feeling like <em>a&nbsp;<strong>\u201crug being pulled out from under you\u201d<\/strong>.<\/em>&nbsp; A few months after, while in her mid-twenties, Jessica took the initiative to do genetic testing and this later confirmed her status as a Duchenne carrier. Straight after Jessica got involved with the Duchenne patient community, supporting fundraising activities and walkathons.<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">Professionally, Jessica pursued her passion to help others in the medical field. She became a surgical technologist, starting in the operating room and then became a nurse. She recalls being in the operating&nbsp;looking at a patient who was under anesthesia, thinking;<\/p>\n\n\n\n<div  class=\"quote-block  color-theme--white\">\n\n\t\n\t<div class=\"quote-block__content\">\n\t\t<blockquote class=\"quote-block__text color-theme-border--white\">\n\t\t\t<div class=\"quote-block__heading heading--4\">\n\t\t\t\tI realized, it&#039;s on me to speak up for this patient who can&#039;t advocate for themselves. I wanted to bring this somehow, outside of the hospital walls, bring this passion that I felt.\t\t\t<\/div>\n\t\t<\/blockquote>\n\n\t\t\n\t\t\t<\/div>\n\n<\/div>\n\n\n\n\n<figure class=\"wp-block-image alignright size-large is-resized is-style-lightbox\"><img loading=\"lazy\" decoding=\"async\" width=\"942\" height=\"1024\" src=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/11\/IMG_9925-942x1024.jpg\" alt=\"Jessica Fabus Cheng\" class=\"wp-image-14908\" style=\"width:327px;height:auto\" srcset=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/11\/IMG_9925-942x1024.jpg 942w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/11\/IMG_9925-276x300.jpg 276w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/11\/IMG_9925-768x835.jpg 768w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/11\/IMG_9925-400x435.jpg 400w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/11\/IMG_9925.jpg 1012w\" sizes=\"auto, (max-width: 942px) 100vw, 942px\" \/><button class=\"modal-toggle\" type=\"button\" data-bs-toggle=\"modal\" data-bs-target=\"#mg-image-modal\" aria-label=\"View image in lightbox\"><img decoding=\"async\" width=\"1012\" height=\"1100\" src=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/11\/IMG_9925.jpg\" class=\"attachment-full size-full\" alt=\"Jessica Fabus Cheng\" hidden=\"\" loading=\"eager\" srcset=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/11\/IMG_9925.jpg 1012w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/11\/IMG_9925-276x300.jpg 276w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/11\/IMG_9925-942x1024.jpg 942w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/11\/IMG_9925-768x835.jpg 768w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/11\/IMG_9925-400x435.jpg 400w\" sizes=\"(max-width: 1012px) 100vw, 1012px\" \/><\/button><\/figure>\n\n\n\n<p class=\"core-block core-paragraph\">She decided to attend her first PPMD (Parent Project Muscular Dystrophy) conference in Washington D.C. She was hesitant as she saw herself as \u2018just a cousin\u2019. However, what she found was a welcoming community of people with Duchenne and their loved ones coming together to support each other. This inspired her to become more involved in Duchenne advocacy. Jessica has since lobbied the government to provide more research funding for Duchenne, given keynote speeches at the PPMD conference, interviewed family members affected by Duchenne and through&nbsp;her social media accessibility initiative,&nbsp;&#8220;Socially Accessible&#8221; she is using her community-building, teaching and advocacy skills to highlight the need for more accounts to be accessible to the disabled community.<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">Jessica strongly believes in the power of storytelling to encourage positive change,&nbsp;both on social&nbsp;media and in advocacy. She established&nbsp;her \u2018The Power of your Story\u2019 program to coach loved ones affected by Duchenne and other conditions to share their story with policy makers and the public. Utilizing her R.E.S.T (Recognize, Embrace and Share Truth) approach she has empowered people to share their unique perspectives. As she says, <\/p>\n\n\n\n<div  class=\"quote-block  color-theme--white\">\n\n\t\n\t<div class=\"quote-block__content\">\n\t\t<blockquote class=\"quote-block__text color-theme-border--white\">\n\t\t\t<div class=\"quote-block__heading heading--4\">\n\t\t\t\tThe most meaningful moments are when I see family members stand up and share their story for the first time.\t\t\t<\/div>\n\t\t<\/blockquote>\n\n\t\t\n\t\t\t<\/div>\n\n<\/div>\n\n\n\n\n<figure class=\"wp-block-image alignright size-full is-resized is-style-lightbox\"><img loading=\"lazy\" decoding=\"async\" width=\"583\" height=\"732\" src=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/11\/jessica-fabus-cheng.png\" alt=\"Jessica Fabus Cheng\" class=\"wp-image-14917\" style=\"width:328px;height:auto\" srcset=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/11\/jessica-fabus-cheng.png 583w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/11\/jessica-fabus-cheng-239x300.png 239w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/11\/jessica-fabus-cheng-400x502.png 400w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/11\/jessica-fabus-cheng-342x429.png 342w\" sizes=\"auto, (max-width: 583px) 100vw, 583px\" \/><button class=\"modal-toggle\" type=\"button\" data-bs-toggle=\"modal\" data-bs-target=\"#mg-image-modal\" aria-label=\"View image in lightbox\"><img decoding=\"async\" width=\"583\" height=\"732\" src=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/11\/jessica-fabus-cheng.png\" class=\"attachment-full size-full\" alt=\"Jessica Fabus Cheng\" hidden=\"\" loading=\"eager\" srcset=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/11\/jessica-fabus-cheng.png 583w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/11\/jessica-fabus-cheng-239x300.png 239w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/11\/jessica-fabus-cheng-400x502.png 400w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/11\/jessica-fabus-cheng-342x429.png 342w\" sizes=\"(max-width: 583px) 100vw, 583px\" \/><\/button><\/figure>\n\n\n\n<p class=\"core-block core-paragraph\">Since she began this program, Jessica has seen government funding for Duchenne increase threefold,&nbsp;although does&nbsp;not accredit this to herself.<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">&#8220;We are all members of the greater Duchenne community, and together we are making a marked difference.&nbsp; I encourage everyone to use their unique gifts and talents to contribute to &#8220;ending Duchenne&#8221; and making accessibility the norm.<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">Jessica won the Mrs. New York America pageant 2021 and this year she is Mrs. New York International. Her titles provide a platform to support her Duchenne campaigning work and she even attends advocacy events with her crown and sash in tow. A few weeks after being crowned Mrs New York America, however, she was diagnosed with H\u00fcrthle cell carcinoma, a cancer of the thyroid. Thanks to surgical intervention and radiation, she is now cancer-free.<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">Jessica juggles her busy schedule with a lot of \u2018self-care\u2019 and takes time off when needed. In her downtime she likes to spend time with her husband and daughter, who are becoming more and more involved in her advocacy work.<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">In the future she envisions herself impacting people on a global scale, bringing hope and inspiring action for the&nbsp;Duchenne and disabled community.<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">To connect with Jessica please visit&nbsp;@socially_accessible on Instagram to not only learn more about telling your story on and offline for advocacy and awareness purposes but to see how easy it is to make your social media accounts accessible to benefit all people who use the platforms.&nbsp;&nbsp; For her work and dedication to Duchenne, Jessica definitely deserves the \u2018Mrs DuchenneCan\u2019 crown.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Jessica uses her platform and titles, including Mrs. NY International, to advocate for Duchenne.<\/p>\n","protected":false},"author":2,"featured_media":16117,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[19,60],"tags":[],"media-type":[5],"therapeutic-area":[21],"class_list":["post-14899","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-rare-disease-community","category-rare-journeys"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.5 (Yoast SEO v27.5) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Jessica&#039;s Many Crowns and Titles - Including Duchenne Advocate - PTC Therapeutics (United States)<\/title>\n<meta name=\"description\" content=\"Jessica Fabus Cheng, a woman of extraordinary strength and resilience, shares her personal Duchenne story and how she is empowering others.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.ptcbio.com\/posts\/jessica-fabus-cheng-takes-the-duchennecan-crown\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Jessica&#039;s Many Crowns and Titles - Including Duchenne Advocate\" \/>\n<meta property=\"og:description\" content=\"Jessica Fabus Cheng, a woman of extraordinary strength and resilience, shares her personal Duchenne story and how she is empowering others.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.ptcbio.com\/posts\/jessica-fabus-cheng-takes-the-duchennecan-crown\/\" \/>\n<meta property=\"og:site_name\" content=\"PTC Therapeutics (United States)\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/PTCTherapeutics\" \/>\n<meta property=\"article:published_time\" content=\"2023-11-21T13:20:21+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-08-29T19:43:55+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2024\/08\/Jessica-DMD-1.png\" \/>\n\t<meta property=\"og:image:width\" content=\"466\" \/>\n\t<meta property=\"og:image:height\" content=\"262\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"jacy\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@PTCBio\" \/>\n<meta name=\"twitter:site\" content=\"@PTCBio\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"jacy\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"4 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/www.ptcbio.com\\\/posts\\\/jessica-fabus-cheng-takes-the-duchennecan-crown\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/www.ptcbio.com\\\/posts\\\/jessica-fabus-cheng-takes-the-duchennecan-crown\\\/\"},\"author\":{\"name\":\"jacy\",\"@id\":\"https:\\\/\\\/www.ptcbio.com\\\/#\\\/schema\\\/person\\\/57224bb5c2cd0a7886dfd1c249bd5b74\"},\"headline\":\"Jessica&#8217;s Many Crowns and Titles &#8211; 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