{"id":14610,"date":"2023-10-04T06:55:00","date_gmt":"2023-10-04T10:55:00","guid":{"rendered":"https:\/\/www.ptcbio.com\/?p=14610"},"modified":"2023-10-03T15:23:59","modified_gmt":"2023-10-03T19:23:59","slug":"managing-complexity-with-passion","status":"publish","type":"post","link":"https:\/\/www.ptcbio.com\/posts\/managing-complexity-with-passion\/","title":{"rendered":"Managing Complexity with Passion:\u00a0PTC Latin America"},"content":{"rendered":"\n<p class=\"core-block core-paragraph\">Latin America (also referred to as LATAM) is a vast region with almost 600 million people \u2013 and therefore, many people there are impacted by rare diseases.<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">\u201cHaving a presence in LATAM is incredibly important for PTC, as it allows us to increase access to our treatments for people living with rare diseases in this expansive region\u201d said Bruce Braughton, SVP &amp; GM, Americas, PTC. \u201cOur dedicated team operates in 13 different countries in the region, with dedicated and passionate employees across these diverse countries. PTC\u2019s operations in LATAM are separated into two distinct sub-regions: SAM and Brazil.\u201d<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">SAM is located in the Americas territory and includes essentially all of Latin America except for Brazil. \u201cS\u201d stands for the countries in the South Cone (Argentina, Chile, Uruguay and Paraguay), \u201cA\u201d stands for Andean countries (Colombia, Ecuador, Peru), and \u201cM\u201d for Mexico. SAM covers almost 340 million people and currently benefits around 200 patients with four therapies and programs in 12 countries, supported by nearly 40 employees.<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">\u201cSAM is very dynamic not only due to the diversity of countries and cultures, the political and economic instability, but also due to its territorial extension,\u201d explains Joeli Mansim, VP &amp; GM SAM Region, PTC. Each sub-region of SAM manages more than one country, or a major country. The level of complexity in each one of these sub-regions is very high: The healthcare systems are different in each country of each sub-region, requiring expertise, knowledge, and a lot of resilience to navigate each of these elements.<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">\u201cThis requires a special level of people and engagement to succeed,\u201d says Joeli. \u201cPeople moved by passion and entrepreneurism, people that want to be better and want to make the world better for the patients and their families \u2013 this is our LATAM team.\u201d<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">PTC also has a strong presence in Brazil, the largest country in LATAM with 215 million inhabitants and more than 13 million people living with rare diseases. In Brazil, patients have access to rare diseases therapies through judicial process.<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">\u201cBrazil is one of the most important regions at PTC globally,\u201d says Rogerio Silva, VP &amp; GM, Brazil, PTC. <strong>\u201cOur goal is to save patients\u2019 lives, and to do that we have to do our best all the time to provide access to their treatment.\u201d<\/strong><\/p>\n\n\n\n<p class=\"core-block core-paragraph\">The team has implemented innovative initiatives, like the implementation of saliva test to determine a genetic diagnosis, providing this service to patients located in the most remote areas of the country. Brazil has also made incredible impact in the rare disease community by building important relationships with healthcare providers and implementing inspiring and unique disease education and awareness campaigns. For example, the team recently won an award for their campaign to raise awareness of the rare disease familial chylomicronemia syndrome (FCS). The team partnered with Mocot\u00f3, an award-winning restaurant in S\u00e3o Paulo, to become <a href=\"https:\/\/www.ptcbio.com\/2023\/06\/07\/25-remarkable-stories-eat-without-fear\/\" target=\"_blank\" rel=\"noreferrer noopener\">Mocot\u00f3 SQF<\/a>, a restaurant tailored to people living with FCS based on the concept &#8220;Eat without fear\u201d (&#8220;SQF&#8221; is an abbreviation in Portuguese for FCS).<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">A unique aspect of operating in LATAM is the varied cultures and many different pathways for treatment access across the diverse countries.<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">\u201cPeople tend to think that the culture is uniform in the region, and it is not,\u201d says Joeli. \u201cIt is very enriching to learn and accept cultural differences, and it is critical to the business in the region. It requires diplomacy to navigate cultures and extract the best in the people to fit the same purpose. Diplomacy doesn\u2019t mean politics to me. It means transparency, honesty, respect, and trust.\u201d<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">\u201cThe PTC LATAM team has made an incredible impact to the rare disease community in SAM and Brazil,\u201d says Bruce. \u201cTheir innovative and entrepreneurial spirit, dedication to driving access and unwavering commitment to patients is inspiring. I truly believe that we are just beginning to see the full potential for what this talented team can do and I look forward to seeing this PTC LATAM Team make an even bigger difference for the patients\/families in the region that are counting on them!\u201d<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Latin America (also referred to as LATAM) is a vast region with almost 600 million people \u2013 and therefore, many people there are impacted by rare diseases. \u201cHaving a presence in LATAM is incredibly important for PTC, as it allows us to increase access to our treatments for people living with rare diseases in this&hellip;<\/p>\n","protected":false},"author":2,"featured_media":14622,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[19],"tags":[],"media-type":[5],"therapeutic-area":[29],"class_list":["post-14610","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-rare-disease-community"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.5 (Yoast SEO v27.5) - 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