{"id":13727,"date":"2023-07-12T12:26:55","date_gmt":"2023-07-12T16:26:55","guid":{"rendered":"https:\/\/www.ptcbio.com\/?p=13727"},"modified":"2025-07-23T09:10:25","modified_gmt":"2025-07-23T13:10:25","slug":"ptc-northern-europe-team-raises-money-and-awareness-for-duchenne-with-cycling-for-de-duchenne-40","status":"publish","type":"post","link":"https:\/\/www.ptcbio.com\/posts\/ptc-northern-europe-team-raises-money-and-awareness-for-duchenne-with-cycling-for-de-duchenne-40\/","title":{"rendered":"PTC Northern Europe team Raises Money and Awareness for Duchenne with Cycling for De Duchenne 40"},"content":{"rendered":"\n<p class=\"core-block core-paragraph\">Our passionate colleagues from Northern Europe cycled 40km this June to raise money and awareness for Duchenne muscular dystrophy (Duchenne). The initiative supported \u2018De Duchenne 40\u2019, organized by Duchenne Parent Project Netherlands, to further research and better care for young adults with Duchenne, so that they live to be at least 40 years old.<\/p>\n\n\n\n<figure class=\"wp-block-image aligncenter size-large is-resized is-style-lightbox\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"768\" src=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Start-1024x768.jpg\" alt=\"PTC's Northern Europe team in orange shirts, standing with their bikes, preparing for the De Duchenne 40\" class=\"wp-image-13729\" style=\"width:512px;height:384px\" srcset=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Start-1024x768.jpg 1024w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Start-300x225.jpg 300w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Start-768x576.jpg 768w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Start-1536x1152.jpg 1536w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Start-2048x1536.jpg 2048w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Start-400x300.jpg 400w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><button class=\"modal-toggle\" type=\"button\" data-bs-toggle=\"modal\" data-bs-target=\"#mg-image-modal\" aria-label=\"View image in lightbox\"><img fetchpriority=\"high\" decoding=\"async\" width=\"2560\" height=\"1920\" src=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Start-scaled.jpg\" class=\"attachment-full size-full\" alt=\"PTC riding for De Duchenne 40\" hidden=\"\" loading=\"eager\" srcset=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Start-scaled.jpg 2560w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Start-300x225.jpg 300w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Start-1024x768.jpg 1024w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Start-768x576.jpg 768w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Start-1536x1152.jpg 1536w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Start-2048x1536.jpg 2048w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Start-400x300.jpg 400w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/button><\/figure>\n\n\n\n<p class=\"core-block core-paragraph\">Camilla Johansson, Director, Marketing &#8211; PTC Northern Europe, explains how and why the team got involved. &nbsp;<\/p>\n\n\n\n<p class=\"core-block core-paragraph\"><strong>How did you get involved and why?<\/strong><\/p>\n\n\n\n<p class=\"core-block core-paragraph\">The Northern Europe team is always looking for ways to support patient communities and organizations in the region, and one way is through fundraising events organized by the groups. Duchenne Parent Project Netherlands is a very active organization who, among other things, organizes the <strong>De Duchenne 40<\/strong> \u2013 a fundraising biking event where participants bike for 40km, either the route organized by the Parent Project or in participants\u2019 own hometowns. Our team had come together for a company team meeting, so we thought, why not combine our meeting with participation in <strong>De Duchenne 40<\/strong>!<\/p>\n\n\n\n<p class=\"core-block core-paragraph\"><strong>Can you tell us more about the event?<\/strong><\/p>\n\n\n\n<p class=\"core-block core-paragraph\">The Parent Project in Netherlands describes on their website that many patients with Duchenne are reaching over 30 years old these days. Although this is progress compared to how it used to be, the aim should be higher! The next milestone for those with Duchenne is to be able to live to at least 40 &#8211; and that&#8217;s why the Parent Project is trying to raise as much money as possible. The proceeds from this, and other fundraising events they organize, go into research for better care for Duchenne patients, so that they live to be at least 40 years old with a good quality of life!<\/p>\n\n\n\n<figure class=\"wp-block-image aligncenter size-full is-resized is-style-lightbox\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"768\" src=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Team.jpg\" alt=\"PTC Norther Europe team celebrating in orange tshirts.\" class=\"wp-image-13730\" style=\"width:512px;height:384px\" srcset=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Team.jpg 1024w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Team-300x225.jpg 300w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Team-768x576.jpg 768w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Team-400x300.jpg 400w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><button class=\"modal-toggle\" type=\"button\" data-bs-toggle=\"modal\" data-bs-target=\"#mg-image-modal\" aria-label=\"View image in lightbox\"><img decoding=\"async\" width=\"1024\" height=\"768\" src=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Team.jpg\" class=\"attachment-full size-full\" alt=\"PTC riding for De Duchenne 40\" hidden=\"\" loading=\"eager\" srcset=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Team.jpg 1024w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Team-300x225.jpg 300w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Team-768x576.jpg 768w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Team-400x300.jpg 400w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/button><\/figure>\n\n\n\n<p class=\"core-block core-paragraph\"><strong>How did you get the team together and their participation?<\/strong><\/p>\n\n\n\n<p class=\"core-block core-paragraph\">We contacted the patient organization in the Netherlands and let them know that we wanted to participate in this charity biking event remotely from Sweden. They were thrilled, as we were the first international team to participate and shared on their social channels. We thought that the more who participate, the better, so we also approached colleagues outside our team who are living in Sweden. In total, nine people participated.<\/p>\n\n\n\n<p class=\"core-block core-paragraph\"><strong>How did you prepare for the 40km bike ride?<\/strong><\/p>\n\n\n\n<p class=\"core-block core-paragraph\">We started thinking about what route we should choose to bike that was at least 40 km long. We had different ideas but decided in the end to go on the west coast, between Halmstad and B\u00e5stad as the scenery is beautiful there. To make sure we were well seen by the people we passed by, we ordered Dutch orange t-shirts and flags for the bikes, with the text <strong>Biking for Duchenne.&nbsp;<\/strong><\/p>\n\n\n\n<p class=\"core-block core-paragraph\">As we were biking by the coast, we came up with the idea to make it even more challenging by choosing to go on so called fat-bikes on the beach! Where the sand was loose, it was very difficult to bike, but by the waterfront, it was much better. We definitely drew people\u2019s attention!<\/p>\n\n\n\n<figure class=\"wp-block-image aligncenter size-large is-resized is-style-lightbox\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"768\" src=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Biking-beach-1024x768.jpg\" alt=\"Group of PTC employees in orange shirts, riding their bikes on the beach in support of the De Duchenne 40.\" class=\"wp-image-13731\" style=\"width:512px;height:384px\" srcset=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Biking-beach-1024x768.jpg 1024w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Biking-beach-300x225.jpg 300w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Biking-beach-768x576.jpg 768w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Biking-beach-1536x1152.jpg 1536w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Biking-beach-400x300.jpg 400w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Biking-beach.jpg 1600w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><button class=\"modal-toggle\" type=\"button\" data-bs-toggle=\"modal\" data-bs-target=\"#mg-image-modal\" aria-label=\"View image in lightbox\"><img decoding=\"async\" width=\"1600\" height=\"1200\" src=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Biking-beach.jpg\" class=\"attachment-full size-full\" alt=\"PTC riding for De Duchenne 40\" hidden=\"\" loading=\"eager\" srcset=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Biking-beach.jpg 1600w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Biking-beach-300x225.jpg 300w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Biking-beach-1024x768.jpg 1024w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Biking-beach-768x576.jpg 768w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Biking-beach-1536x1152.jpg 1536w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Biking-beach-400x300.jpg 400w\" sizes=\"(max-width: 1600px) 100vw, 1600px\" \/><\/button><\/figure>\n\n\n\n<p class=\"core-block core-paragraph\"><strong>How much money was raised and how will this help the organization?<\/strong><\/p>\n\n\n\n<p class=\"core-block core-paragraph\">Each of us made a contribution when signing up to the event. In total, more than 200 people participated in <strong>De Duchenne 40 <\/strong>and an amount of \u20ac 33,792 was raised! The proceeds will fund research towards better care for young adults with Duchenne. &nbsp;<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">To learn more about this event visit the <a href=\"https:\/\/www.actievoorduchenne.nl\/de-duchenne-40\" target=\"_blank\" rel=\"noreferrer noopener\">Duchenne Parent Project Netherlands website<\/a><\/p>\n\n\n\n<figure class=\"wp-block-image aligncenter size-large is-resized is-style-lightbox\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"765\" src=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Finished-1024x765.jpg\" alt=\"PTC employees jumping on the beach in celebration of De Duchenne 40\" class=\"wp-image-13733\" style=\"width:512px;height:383px\" srcset=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Finished-1024x765.jpg 1024w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Finished-300x224.jpg 300w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Finished-768x574.jpg 768w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Finished-1536x1148.jpg 1536w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Finished-2048x1530.jpg 2048w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Finished-400x299.jpg 400w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><button class=\"modal-toggle\" type=\"button\" data-bs-toggle=\"modal\" data-bs-target=\"#mg-image-modal\" aria-label=\"View image in lightbox\"><img decoding=\"async\" width=\"2560\" height=\"1913\" src=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Finished-scaled.jpg\" class=\"attachment-full size-full\" alt=\"PTC riding for De Duchenne 40\" hidden=\"\" loading=\"eager\" srcset=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Finished-scaled.jpg 2560w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Finished-300x224.jpg 300w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Finished-1024x765.jpg 1024w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Finished-768x574.jpg 768w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Finished-1536x1148.jpg 1536w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Finished-2048x1530.jpg 2048w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/07\/De-Duchenne-40_Finished-400x299.jpg 400w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/button><\/figure>\n","protected":false},"excerpt":{"rendered":"<p>Our passionate colleagues from Northern Europe cycled 40km this June to raise money and awareness for Duchenne muscular dystrophy (Duchenne). The initiative supported \u2018De Duchenne 40\u2019, organized by Duchenne Parent Project Netherlands, to further research and better care for young adults with Duchenne, so that they live to be at least 40 years old. Camilla&hellip;<\/p>\n","protected":false},"author":2,"featured_media":13728,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[19],"tags":[],"media-type":[5],"therapeutic-area":[21],"class_list":["post-13727","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-rare-disease-community"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.5 (Yoast SEO v27.5) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>PTC Northern Europe team Raises Money and Awareness for Duchenne with Cycling for De Duchenne 40 - PTC Therapeutics (United States)<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.ptcbio.com\/posts\/ptc-northern-europe-team-raises-money-and-awareness-for-duchenne-with-cycling-for-de-duchenne-40\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"PTC Northern Europe team Raises Money and Awareness for Duchenne with Cycling for De Duchenne 40\" \/>\n<meta property=\"og:description\" content=\"Our passionate colleagues from Northern Europe cycled 40km this June to raise money and awareness for Duchenne muscular dystrophy (Duchenne). The initiative supported \u2018De Duchenne 40\u2019, organized by Duchenne Parent Project Netherlands, to further research and better care for young adults with Duchenne, so that they live to be at least 40 years old. 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