{"id":12229,"date":"2023-02-21T13:39:23","date_gmt":"2023-02-21T18:39:23","guid":{"rendered":"https:\/\/www.ptcbio.com\/?p=12229"},"modified":"2025-07-23T09:21:23","modified_gmt":"2025-07-23T13:21:23","slug":"claudia-espinal-a-mompreneur-with-a-duchennecan-perspective","status":"publish","type":"post","link":"https:\/\/www.ptcbio.com\/posts\/claudia-espinal-a-mompreneur-with-a-duchennecan-perspective\/","title":{"rendered":"Meet Claudia: A Mompreneur and Duchenne Advocate"},"content":{"rendered":"\n<figure class=\"wp-block-image alignleft size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"682\" src=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/02\/Claudia-Espinal-1024x682.jpg\" alt=\"Claudia reading a book to her children\" class=\"wp-image-12232\" style=\"width:413px;height:275px\" srcset=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/02\/Claudia-Espinal-1024x682.jpg 1024w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/02\/Claudia-Espinal-300x200.jpg 300w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/02\/Claudia-Espinal-768x512.jpg 768w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/02\/Claudia-Espinal-1536x1024.jpg 1536w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/02\/Claudia-Espinal-400x267.jpg 400w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/02\/Claudia-Espinal.jpg 2000w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<p class=\"core-block core-paragraph\">Claudia is a mother of two, caregiver, social media content creator and Duchenne advocate from the Dominican Republic, living in New York. Originally a lawyer by trade, Claudia spent a happy, but demanding, few years raising her family whilst simultaneously juggling work commitments. However, this all came to a sudden halt when Claudia noticed that her son, Rodrigo, wasn\u2019t reaching his physical development milestones. After just over a year of extensive doctors\u2019 appointments, hospital tests and avid internet searches, Rodrigo was finally diagnosed with Duchenne Muscular Dystrophy (DMD). He was just five years old.<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">&nbsp;After the reality of Rodrigo\u2019s diagnosis and treatment requirements sunk in, Claudia realized that it was becoming impossible to continue her work as a lawyer whilst being a full-time caregiver. Conscious that she was a single parent who needed to make an income to support her family and her son\u2019s treatment, she started a small business selling home-made goods; but just as she was getting into the swing of her newfound business, the COVID-19 pandemic hit, and she was unable to operate. Devastated but determined not to give up, Claudia started exploring \u201cwork at home for mum\u2019s\u201d online and found herself instantly drawn to the social media and ecommerce industry. Claudia is now an established content creator, with over 30,000 followers on Instagram, and a successful online blog and YouTube channel. From business tips to healthy meals in a hurry, Claudia has dedicated her career to teaching other mothers in Latin America about how they can make money at home whilst simultaneously caring for a family, particularly for those who are caregivers to children and find themselves unable to juggle traditional jobs.<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">Following Rodrigo\u2019s diagnosis, Claudia and her family moved to New York, where Rodrigo will face treatment for the next 3-5 years. Despite facing the challenges of being a single-earner in one of the most expensive cities in the world, Claudia has used her business-savvy skills to support her family.<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">But Claudia could not forget the challenges of getting a diagnosis in the Dominican Republic and vowed to try and help. Diagnosis rates of DMD are still extremely low across South and Central America, and for those who are diagnosed it is often too late to access treatment. In addition, poverty rates are high, resulting in most families not even having access to a wheelchair. Determined to help conquer this, Claudia has set up a not-for profit in the Dominican Republic to provide support for those living with Duchenne or Rare Disease. The digital world has allowed Claudia to spread awareness of Duchenne globally and opened a breadth of resource. \u201c<strong>I may not be in a position to help financially, but through my community I know people who can help. And it is my job to raise awareness for those who need it\u201d.<\/strong><\/p>\n\n\n\n<figure class=\"wp-block-image alignright size-full is-resized is-style-default\"><img loading=\"lazy\" decoding=\"async\" width=\"1000\" height=\"800\" src=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/02\/Book-PromoResized.jpg\" alt=\"Image of the cover of Claudia's book.\" class=\"wp-image-12235\" style=\"width:309px;height:247px\" srcset=\"https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/02\/Book-PromoResized.jpg 1000w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/02\/Book-PromoResized-300x240.jpg 300w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/02\/Book-PromoResized-768x614.jpg 768w, https:\/\/www.ptcbio.com\/wp-content\/uploads\/sites\/2\/2023\/02\/Book-PromoResized-400x320.jpg 400w\" sizes=\"auto, (max-width: 1000px) 100vw, 1000px\" \/><\/figure>\n\n\n\n<p class=\"core-block core-paragraph\">Always looking for ways to make DMD awareness more accessible, Claudia has also published a book titled \u2018Adventures of Rodrigo\u2019. Inspired by her son\u2019s diagnosis and experience living with Duchenne. The book is available in both in English and Spanish and will be distributed across Rodrigo\u2019s school to help educate his classmates on his condition.&nbsp; Claudia became inspired to write a book in Spanish when she became aware of the lack of resources and information about DMD across Latin America. She hopes that Adventures of Rodrigo will help bring together other children with the condition.<\/p>\n\n\n\n<p class=\"core-block core-paragraph\">Claudia\u2019s mental strength and resilience has allowed her to achieve great things and shown what CAN be achieved in the face of adversity. In Claudia\u2019s own words, <strong>\u201cDon\u2019t give up, empower yourself. This is our reality, and we can\u2019t change it, but we can keep going\u201d.<\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Learn more about Claudia, a mother, caregiver, social media content creator &#038; Duchenne advocate.<\/p>\n","protected":false},"author":2,"featured_media":16101,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[19,60],"tags":[],"media-type":[5],"therapeutic-area":[21],"class_list":["post-12229","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-rare-disease-community","category-rare-journeys"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.5 (Yoast SEO v27.5) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Meet Claudia: A Mompreneur and Duchenne Advocate - PTC Therapeutics (United States)<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.ptcbio.com\/posts\/claudia-espinal-a-mompreneur-with-a-duchennecan-perspective\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Meet Claudia: A Mompreneur and Duchenne Advocate\" \/>\n<meta property=\"og:description\" content=\"Learn more about Claudia, a mother, caregiver, social media content creator &amp; 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